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Fundraiser for Marfan Foundation

One of the members of W2LIE.net is raising money for the Maran Foundation.  
Here is his message:

My name is Michael Kramer and I was an active member of the Lynbrook Fire Department for many years. I am currently an associate member of Tally-Ho Engine 3. I have a condition called Marfan Syndrome, as does my 5 year old daughter. Marfan Syndrome is a connective tissue disorder which could be life threatening if it goes undetected and isn't monitored. This condition causes aortic aneurysms, scoliosis, and chest bone deformities to name a few. Due to the effects and many surgeries I am unable to do what I love which is firefighting.

I am trying to raise awareness and funding for the Marfan Foundation to help find a cure one day. This is a condition that most people have never heard of. On May 3rd we are going to walk together with our family to raise awareness. Anything you can do to help us support the amazing research efforts that are being made would be greatly appreciated. Thank you - together we can do anything!
Live, Love and Cherish EVERY DAY!

Please support Michael as he tries to reach his goal of $7,500

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Posted by w2lie on Thursday February 13, 2014 - 03:33:00Bookmark and Share  printer friendly create pdf of this news itemLAN_431; LAN_432; LAN_433;
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